We are having a boy!

bump-says-hello

Well, that’s the good news…

The bad news is that during the 20 week scan the sonographer noticed that baby’s stomach was next to his heart, she muttered something about a hole in his diaphragm, adopted a sad face and said she was so very sorry. We were then ushered into the private room to wait for the midwife to give us an appointment with the specialist at Queens Med and sent on our way with only Google for company…

Oh, and a parking ticket, since our scan had taken longer than expected (thanks a bunch hospital!)

After reading the whole of the internet and shedding many many tears I decided to stop reading the whole of the internet (it is a very scary place) and concentrated on staying with www.cdhuk.co.uk (They have been wonderful, hence all the links)

I have waffled off on one again… Right, so CDH… basically our boy has a hole in his diaphragm, after seeing the very nice man at Nottingham QMC we have learnt that it is a left sided hernia (the most common) and his stomach is already in his chest cavity and has pushed his heart over to the right. Our consultant is fairly confident that his heart is healthy and is working as it should and also he is fairly certain that his liver is still below his diaphragm (very important as the liver is big and stiff and will obviously take up more room in the chest cavity leaving less room for the lungs to develop) However, baby boy also has dodgy looking kidneys which the consultant is keeping a close eye on…

What this all means is, I will have to give birth at QMC, possibly be induced a week or 2 early… baby will then be whipped away and immediately put on life support, and hopefully he will become stabilised enough to undergo the surgery to correct his diaphragm and jumbled up organs. The operation is *pretty straight forward* but the problem lies in getting baby stabilised, some babies lungs just don’t develop well enough to survive… Currently the overall prognosis (outlook) for babies diagnosed with CDH is 50%.

cdh diagram

A simple diagram describing CDH

So, what happens next: On Wednesday we are meeting with the consultant again and also with one of the surgeons to discuss what will happen and to ask him/her questions. We are waiting on an appointment to come through from Sheffield Hospital for an MRI scan, our Nottingham consultant insists that the lady there is the best for looking at fetal lungs. The MRI should hopefully give us a better idea of what is going on in there. At the moment, so far I feel like he is in good hands, which is reassuring at least!

Long term I am guessing there will be a lot of scans and a lot of fingers crossed and hoping that things don’t get worse…

Anyway, it is shit but he has a chance so we will cling to that and since he is a mixture of me and Steve I’m pretty certain he will have the stubborn, pig headed, never give in gene and will fight when he gets out.

I have put in a ‘follow’ doo dah (bottom right) for anyone who wants updates on what is going on… it is rather exhausting explaining everything and there is no way I will remember what I have and haven’t told people!

 

Comments

  1. Granny Donnison says:

    Just to say that my new unborn grandson will have a stubborn gene and remember, he comes from strong stock on both sides of the family. He’ll be awkward, stubborn and pig-headed enough to come through this and stick his tongue out at everyone when he is born. Remember, he’s got a lot of Irish blood in him and ‘coming thro’ adversity’ is our middle name. Bless you grandson(Fred) and see you in a few months xxxx

    • Thank you Granny Donnison :)

      I have also let him know that you will come and bash his ears if he doesn’t come out fighting this! hehe

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